This past December, we were blessed to have the opportunity to donate our services at the National MPS Society annual family conference held at Disney World in Orlando, FL. This annual family conference is attended by families with children affected by MPS and related diseases. Mucopolysaccharidoses (MPS) and related diseases are genetic lysosomal storage diseases (LSD) caused by the body’s inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials. Pure 7 Studios, along with Contagious Photography from Hattiesburg, MS traveled to Orlando providing complimentary studio family portraits during one full day of the event. The following evening, each family was given a framed portrait of their family. The portraits and frames were donated and sponsored by our church in Destin, Shoreline Church. We also documented some of the events planned for the children that took place that weekend. This was most definitely one of the most rewarding experiences we have ever had, both professionally and personally. Although these families and children have dealt with more than most of us can even imagine, they are filled with JOY. These families were so loving, gracious, and downright INSPIRATIONAL. We are hoping that we will be able to volunteer our services again for future MPS Society events. A huge THANK YOU to all of the families that allowed us to be a part of this event, may our paths cross again! Here are some of the family portraits!
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